NL
DE
Our purpose
We aim to improve diagnosis, increase understanding of the molecular and clinical mechanisms underlying monogenic and multifactorial disease, and develop novel therapeutics, which will allow us to save vision and hearing in a large part of the patient population.
Goals
- To develop and evaluate strategies to monitor symptoms/toxicity, functioning and health-related quality of life, in order to facilitate timely self-management, proactive care planning, and/or referral to supportive care interventions.
- To identify psychosocial and lifestyle-related factors that are associated with cancer symptoms and outcomes in order to identify targets for supportive care 32interventions.
- To identify patients’ needs and preferences regarding the content and delivery of supportive care interventions.
- To develop and evaluate the effect of personalized supportive care interventions, as well as patient empowerment, self-management, and shared decision-making strategies regarding symptoms/toxicity, functioning, health-related quality of life and clinical outcomes (e.g., disease progression, recurrence, survival), and study underlying mechanisms of action.
- To study how to implement effective (personalized) supportive care interventions in daily clinical practice and to de-implement less-effective supportive care interventions
