Research group Meaning and ethics regarding the end of life

We aim to develop a theoretical, interdisciplinary model for meaningful and ethical end of life care that addresses current societal challenges.

For this, we have specified the following sub-aims:

1. We examine the lived experiences of serious illness and dying from the perspectives of patients, caregivers, and healthcare professionals.
2. We aim to investigate how these experiences are shaped by socio-cultural norms, behaviors, and systems.
3. We aim to clarify the complexities of transmural patient journeys, particularly for those with multi-morbidity, dementia, or disadvantaged or minority backgrounds.
4. We aim to identify and address key medical ethical dilemmas, and implement ways to appropriately deal with them and foster our moral discernment.
5. We aim to create an evidence-based framework to guide improvements in end of life healthcare.
6. We aim to foster (inter)national ethical health and end-of-life policies that can guide us, now and in the future, to distribute care and resources in a meaningful, inclusive and fair way, in the midst of the emerging societal challenges.

We aim to establish and strengthen highly relevant and innovative qualitative research methods that enable us to capture the complexity of illness and end-of-life experiences along transmural patient journeys.

See the publication list on Web of Science.