Centers of clinical expertise
Centers of clinical expertise
What are centers of expertise for rare diseases
Centers of clinical expertise for rare diseases are acknowledged by the Ministry of Health, Welfare and Sport. read moreWhat are centers of expertise for rare diseases
Centers of clinical expertise for rare diseases are acknowledged by the Ministry of Health, Welfare and Sport. A broad range of criteria are used in the assessment of 288 potential centers of expertise. There are 17 European criteria with regards to 7 different themes. Guidelines, care paths, standards and indicators are all of influence. There is a clear focus on scientific research. The continuity of care is also an important factor.Being granted the status of center of expertise for rare diseases is a major step towards better integrated care for patients with rare diseases that affects 6 to 8% of the population.
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Women more likely to develop mild variant Stargardt's disease24 May 2024
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The construction of a national database will accelerate research on hereditary cancer€3.4 million grant from KWF ensures the gathering of rare data6 December 2023
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Radboudumc participates in HiFi Solves, a Global Consortium of Clinical Genomics Research LeadersAim to Share Best Practices and Increase the Understanding of Genetic Disease22 November 2023