Centers of clinical expertise
Centers of clinical expertise
Paraxysmal nocturnal hemoglobinuria (PNH)
About center of expertise
Radboudumc's center of expertise in PNH has and maintains knowledge in the field of diagnosis, complications, and treatment of the rare and severe disease PNH. The center has a national function and cooperates with other hospitals. read moreAbout center of expertise
Radboudumc's center of expertise in PNH has and maintains knowledge in the field of diagnosis, complications, and treatment of the rare and severe disease PNH. The center has a national function and cooperates with other hospitals. Our PNH team works closely and permanently within several medical disciplines.Our team consists of:
- Internist hematologists
- Specialist nurses
- Surgeon
- Gynecologist
- Pediatrician
- Pharmacist
- Molecular biologist
- Coagulation physiologist
Within this center of expertise, we want to improve the quality of diagnoses, treatment and care for patients with PNH. That is why we use:
- Advanced Diagnostics
- Protocol treatment
- Specialized home care
- Extensive collaboration with the other PNH centers of expertise in the world
- Cooperation with other hospitals and general practitioners in the Netherlands
- Knowledge transfer
- Trial Bureau of Hematology-Medical Oncology
- Hematology Laboratory (Laboratory Medicine Department)
The center of expertise in PNH is known both nationally and internationally for its patient care and its active role in scientific research. Our PNH specialists have close ties with their colleagues elsewhere in the world so that their knowledge and skills are always up to date.
The Ministry of Health, Welfare and Sport has acknowledged the center of expertise in PNH.
About the Radboudumc center of expertise
The center Paroxysmal nocturnal hemoglobinuria (PNH) focuses on the rare blood disease PNH, which causes a chronic breakdown of red blood cells (hemolysis) produced by stem cells in bone marrow. read moreMaking an appointment
Your general practitioner or medical specialist can refer you to Radboudumc’s center of expertise in PNH. You will then be invited to our outpatients' clinic for an appointment at a proposed date and time. read moreMaking an appointment
Your general practitioner or medical specialist can refer you to Radboudumc’s center of expertise in PNH. You will then be invited to our outpatients' clinic for an appointment at a proposed date and time. We will also send you a consent declaration for the retrieval of your medical records.During your first visit, the internist-hematologist will check your state of health and explain the PNH disease, its symptoms and any treatment you will receive. Please bring a form of identification, your insurance card, any medication you use and the letter confirming your appointment, so that you know where to be in the hospital.
Patient organization
ERN
Disorders and treatments
Research and education
Participating in research
We will most probably ask you to participate in scientific research. Our research aims to improve treatments and to reduce its side effects.Education regarding PNH
We teach students, doctors, and specialists and so that future healthcare specialists are better at detecting PNH. We also offer both medical and scientific research internships. read moreEducation regarding PNH
We teach students, doctors, and specialists and so that future healthcare specialists are better at detecting PNH. Radboudumc’s center of expertise in PNH also offers both medical and scientific research internships.We also educate you as PNH patient, your loved-ones, and nurses involved in your treatment. We will train you and them in recognizing changes and complications, and explain how to act accordingly.